Tag Archives: suffering

When It’s Been Too Long

I have about 20 blog posts in my head that never got written.Oh well. What can you do? What can you do? I am here now. 🙂

Though extremely busy, 2014 has been exceptionally good to us thus far. This place of grace and happiness has been a welcomed change, indeed.

I will update everyone on the changes we have seen in our lives soon. In the meantime, I just wanted to publicly thank my Heavenly Father for all He has done, is doing, and will do on behalf of my family. As I bask in His grace, I am continually reminding myself of just how good and sovereign He will always be, no matter our circumstances.

After all, it is not just on the mountaintop that we are called to say, “Blessed be Your Name.” During this time of vast earthly blessing, I am trying to consciously remind myself of that every single day. I am no stranger to the fact that, with God’s permission, life can drastically change. I am aware of the fact that, within minutes, life can hurt, can wound in ways you could never imagine. He, though, thankfully always remains the same.

Right now, though, after seemingly being asked to stay so long in one valley or another, I am standing on the mountaintop and see nothing but blue skies around me. I know I owe it all to the One who is the Giver and Sustainer of life itself.  I can’t wait to see what He has in store for us next. 🙂

Now to Him who is able to do far more abundantly beyond all that we ask or think, according to the power that works within us,to Him be the glory in the church and in Christ Jesus to all generationforever and ever. Amen.”
Ephesians 3:20-21

 

 

 

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Filed under 2014, grace

What 2013 Taught Me

I don’t know what yours was like, but my 2013 was quite the year.

2013 was a year I’ll certainly never forget and wouldn’t necessarily want to re-live. I won’t, though, go as far as to say I wish I could just re-do 2013 all over again. Though it was excruciatingly hard, the lessons I learned within the crazy that was my 2013 were well worth the pain and will never, ever be forgotten.

I’m not going to re-hash my entire year in this post, as there is plenty of posts already written (even whole series — read here and here) about much of what transpired in my life last year; others part of my life have remained more private, as they should.  If you haven’t been reading my blog the past year, just know I, even one with a wild imagination, could never have written the journey through which the Lord asked me to walk in 2013, especially the first 8 months of it.

As much as you’d like to think differently, you can’t change the past. You can only move forward. 2013 was what it was and it’s my job to learn from it, embrace the brokenness that came in many areas from it, and walk in 2014 full of joy and hope, just like I did when I walked unknowingly into the madness that was last year.

So, what did 2013 teach and/or remind me?
Well, lots of things.

Here’s some examples, in no particular order (except the 1st one):

  • God is still good and sovereign. Absolutely nothing can change that fact.

Though 2013 was my hardest yet, my steadfast belief in God’s sovereignty and goodness did not change. Were their moments I struggled with why God allowed me to become unexpectedly pregnant, let alone why He then allowed our child to die? Of course. I’m a human, after all. I am a human, though, who has seen the hand of God all over their life time and time again, even when things look the darkest from an earthly perspective.

  • My life is not about me.

After almost dying at 19, I am blessed to know from a young age that my life is not about me but instead the glory of God being displayed through how I respond to not only life’s highest highs but also its lowest lows. Though I know I didn’t do it perfectly, I hope that this year I brought Him glory through how I dealt with the circumstances He allowed into my life for my refining and His glory. I pray I do the same in 2014, no matter what happens.

  • My marriage is rock solid and can withstand anything that life throws its way.

I didn’t say my marriage is perfect, because it most certainly isn’t; it does involve two humans, after all. 😉 It is, though, rock solid, and it just keeps getting better. 2013 was the hardest year yet for our four-year-marriage. I’m thankful to say, though, that everything we went through this year brought us even closer together, horrible miscarriage included. During this year, at times, we fought a lot. At times, we cried a lot. At times, to be honest, we struggled a lot…but we came out on the other side a stronger, more unified couple. We came out a better definition of two people living “one flesh.” We came out of the struggle closer to the Lord on an individual basis as well as a corporate one. As  a couple, we came out of 2013 changed, changed for good! I can’t imagine displaying God’s love for the Church through marriage with anyone else than my best friend.  He rocks my world. 🙂

  • I long to be a mother more than sometimes I even know.

This could, and eventually will, be the subject of a whole post. Stay tuned. 🙂

  • Adoption (at least our journey) is hard – really hard – but so worth it. We can’t wait to meet Noah and Hannah and pray they join our family at the same time. 🙂

The giant mountain of paperwork hasn’t even been the hardest part. Being married to a really detailed-oriented person, though, definitely helped in that area. 🙂 No, the paperwork has been a breeze compared to other things, mostly emotional in nature, through which we’ve had to work; some of those things are just a part of the usual process (and will be written about in another series) and others are unique to our particular situation. No matter what comes up, though, the important thing is we’re committed to working through it; we’re committed to finding our children and bringing them home. No matter what, we Paynes don’t ever give up.

  • People like other people’s drama and shy away from public expressions of grief.

I learned this lesson back in the Spring/Early Summer. I had thousands of people (mostly strangers) suddenly flocking to my blog to read all 21 posts about our hard-to-believe adoption/surrogacy/pregnancy/miscarriage/adoption journey. Only an 1/8 of that audience read, though, after the 13th installment of the aforementioned series when I was heartbroken, and therefore devoted three blog posts to redeeming my miscarriage; most of the sharing of my posts stopped, too. Not surprisingly, most of that audience (and shares) returned once again when the other more-appealing series resumed for the last 7 posts.

Don’t get me wrong. I sincerely appreciated the concern (or curiosity) others showed (either through reading and/or contacting me) during my large series full of twists and turns. I just was rather shocked that my readership went down so much when I took a break from the other series (since I was initially hiding (even from my own parents) the fact I was sick post-miscarriage) to publicly deal with the intense grief that came with all that drama people loved to read. Though they were much, much fewer in nature, the private messages I did receive from that miscarriage series made the emotional exhaustion from writing them well worth it. It also reiterated to me just how important it is for me to obey His voice and live as transparently as possible, so that He can use me to encourage others who often feel alone in how they feel. I was amazed how alone so many women who have had miscarriages felt; it made me incredibly sad. It shouldn’t be this way, and as long as I’m alive, I will continue to be as real as possible (on that issue and others) so that others feel the freedom that comes with living without satanic shame.

Though I was humbled by my viewership this year, I don’t write for certain stat numbers. I write in order to be able to breathe, to connect with my Creator, to glorify His name and have Him do whatever with it He wants.  Your guess as to what He does with it in 2014 is as good as mine. No matter how many read, it’s all for Him!

  • Living “transparently” doesn’t have to mean giving anyone and everyone 24/7 access to your life, emotions, time, thoughtfulness, etc. without requiring anything from them; no, that would be toxic and will eventually leave you feeling burnt.  Having Christ-inspired, personal boundaries is one of the healthiest things you can do for yourself and others.

I wrote about this topic in my “mid-life crisis” series.

  • Though he came in contact with thousands, and was followed intensely by 12, even Jesus’ inner circle only consisted of 3 people. Yours will look about the same; don’t kid yourself into believing otherwise.

Not every friend sticks closer than a brother, and that’s OK. Life is full of relationships, each with their own level of closeness. Oftentimes, those in relationship aren’t even desiring the same level of closeness, but unless they’re willing to be honest with one another, one just assumes (and prays) the other will “get a clue”. Somewhere between sometimes and usually, the other party eventually does get a clue and is consequently left confused; that is, unless you’re like my former self, and then often you are left clueless for far longer than expected. In my case, for most of 2013, I also didn’t believe in personal boundaries, so my addiction to emotional harlotry didn’t help my case.

Some friendships are for a season, then fade, then come back again. Some never come back. Some evolve and change over time. You can be someone’s friend without giving them permission to know every single thing about you and vice/versa. You, unbeknownst to me until this year, can also do this while still upholding Christ’s call to love. In fact, sometimes the most loving thing you can do is let things change inside of, or even let go of, a relationship that is near and dear to you.

In rare cases, you will find those with whom your soul connects in a way that is, if I can say, not of this world. You will find people who just “get” you without you needing to explain yourself. They will give you the benefit of the doubt but be willing to confront you when needed. They will desire your good above their own, always without question. They will guard your heart as if it were their own. In your divinely-inspired friendship, you will give and take in a natural, beautiful exchange of wills. Cherish those people. Protect those people with a fierce and loyal love this world does not know.

  • With God’s help, you really can survive anything. Better yet, you can not only survive but thrive while in the midst of the deepest pain, no matter its nature.

I learned this valuable lesson in the physical realm back in 2005 and the emotional realm in 2013.

So what will 2014 bring?

I read a quote on New Year’s Eve that really spoke to me:
“A new year is at hand,” the king said. “We cannot tell what it will bring. If it brings peace, how thankful we shall all be. If it brings us continued struggle, we shall remain undaunted.”
King George VI

That is my prayer for 2014, that I remain undaunted in my commitment to the Lord and His sovereignty and goodness, no matter what befalls me this upcoming year. Whether it be another year of not having the opportunity to be a mother, another year of disappointments and confusion, or even death. By God’s grace, as long as I’m alive, I pray I remain undaunted in my commitment to Him.

Lord, let it be so.

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Filed under 2014, Adoption, Baby, grace, Life, Marriage, Miscarriage, Prayer, Purpose

Seeing Red

Some dates are etched in your memory forever.

Birthdays. Anniversaries. Days our loved ones pass away. Major life events. We all can list at least a few dates that automatically stick out in our minds, whether for welcomed reasons or not.

December 4, 2013 will always be one of those days for me. That was my estimated due date for the child I miscarried on April 1st at 5 weeks gestation. That was the day our child, as microscopic as he/she was, went to be with the Lord. That was the day part of me went to be with Him, too.

To say I was heartbroken after we miscarried is a gross understatement. If you recall, there was a lot already going on in our lives in early Spring. It was so much that the most grounded people would feel like they were losing their grip on their sanity prior to what transpired on April 1st. As we all know, the roller coaster wasn’t over, though.

Once the bleeding stopped, I was emotionally as empty as my formally impregnated uterus; in a matter of a few hours, the life had been sucked out of me, literally and figuratively. Like millions of women each year, I was left to pick up the pieces of my shattered heart and move on.

For me, though, “moving on” was going to be a long, long journey.
It was going to be a much longer, harder, more private pilgrimage through grief than with what I (and, in some ways, others) was comfortable.
It was my journey, though, nonetheless.

The first few weeks, I would come home from work some days and just sit on the floor in our empty nursery. I would begin to replay over in my mind the trauma that had been the few weeks leading up to me unexpectedly getting pregnant, as well as the subsequent drama which led to finally having a confirmation that I had indeed miscarried and wasn’t losing my mind...or was I? 

When I was alone, the previous few months played out like a dramatic Nicholas Sparks’ movie in my head. Scene after scene, I saw the characters, i.e. me and my husband, develop and the plot thicken and thicken some more. The plot became so thick, I felt as if I were traveling through a dense fog in my head, a fog which would last for months. Some days the fog was so thick, I couldn’t tell if I was indeed the protagonist or the antagonist of my own story; some days I felt like both, sometimes simultaneously. As I dealt with post-miscarriage health complications for months on end on top of my grief, there seemed to be no climax of events (let alone a resolution) in sight, in my real life or in my imagination.  I wanted out of the madness. Honestly, some days I wanted to just go to sleep and never wake up. I wanted peace and rest, and those things seemed hard to come by at the time.

After all, it was hard to feel at peace when you feel you have failed as a woman, and more importantly, as a wife. For a myriad of reasons, that’s the way I felt for a long, long time. Thankfully, though, after months of spending time with the Lord, countless hours of conversation with my husband and a few close friends, and being forced to deal with the root of my feelings, I (for the most part) don’t feel that way anymore.

Thank God, I don’t usually feel that way anymore.
One day, I hope to say I don’t ever feel that way anymore.
One step at a time, though.

I don’t really feel it necessary (at least now) to take you through the play-by-play of the highs and lows of my journey of grief. I guess after the realization I came to during my mid-life crisis, I don’t feel anymore like I “owe” you, the reader, an “all-access” pass into the most personal caveats of my life. I guess I’m still learning to have boundaries in my relationships, online and off. I have to say, after a year of a lot of hurt and heartache, it feels good to not (usually) feel guilty for protecting myself emotionally.

Just know that the last 8 months of my life have been filled with extremely personal, heart-wrenching moments. It hasn’t always been pretty. In fact, many times it’s been rather ugly, but it’s always been one thing – real and raw. After all, love it or hate it, I know no other way to be. If there’s one thing I’ve re-learned during the craziness that has been my 2013, it’s that I can’t control a lot in my life. God, in His sovereignty and goodness, numbers my steps, oftentimes much differently than I would. On the flip side, though, I’m learning there are some things I can control, namely having healthy boundaries with people and owning and being proud of, instead of shaming, my own journey.

And oh the journey it has been.

I’m thankful, though, I’m finally far enough down the path that I can say I’m thankful for the past 8 months. I may not ever understand why John and I had to lose a child, or why it had to affect me so deeply, but I do know good has come of it.

do know that what Satan meant for evil, my gracious Lord meant for good. Yes, He meant it for my good and, more importantly, His glory. Those nights I lay crumbled up on the floor in my empty nursery, when I wasn’t sure if I was the protagonist or antagonist of my own story, I had forgotten to ask the Author and Finisher of my story who I am. Instead of trusting Him, I listened to my doubt. Instead of believing I am who He says I am (beloved and loved, far from a failure), I believe the father of lies who is always out to steal my (and your) joy and vision. Thankfully, I don’t forget anymore.

In the Old Testament, when God’s people had an unforgettable encounter with the LORD, they often built a memorial out of stone in commemoration of the event. They (and sometimes the LORD Himself) wanted a tangible reminder of what the LORD had done. I, too, wanted a tangible reminder of how the Lord had restored and healed my heart, so I completely changed my appearance (at least for now).

For almost 28 years, I was a blonde. Now, I’m a red head. 🙂

2013-12-05_16-12-01_263When I look in the mirror, I am constantly reminded of the fact I not only look like a completely different person, I am a completely different person because of God’s gracious work in my life! I’m pretty sure I will eventually go back to my roots (or closer to them than I am now 😉 ), but for now, I needed an external expression of a very powerful, inward change. The dye is temporary, but the branding on my heart is forever.


I finally see He is bringing much beauty from the ashes of my once shattered heart.
He is mending and strengthening. He is healing and restoring.
He is being what He always is – good. So, so good.

I’ll leave you with a song that has meant so very much to me over the past several months.

 

Father, thank you for loving me so.

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Filed under Baby, grace, Life, Marriage, Miscarriage, Redeeming Loss, Sanctification

Cosmic Shift

Drafts. A post. Lots more drafts.
That’s been the extent of my blogging the past several months.

Tears. Refining. More Tears. Did I mention tears?
That’s been my life the past several months.
Much of that just hasn’t been put into words, here or even in-person.

Why?
Well, because…

Sometimes the most powerful, gut-wrenching yet healing moments in life leave us simply so undone we (even I) am unable to utter a sound, let alone wax poetically about the cosmic shift occurring within. We are unable to ascertain just exactly what our Creator is doing in the miry depths of our disheveled soul, which can leave us feeling vulnerable to the core and, at times, scared of what is next. All I know is that, if we surrender to the beautiful chaos, when He’s done chipping away and putting back together, we will never be the same. I will never be the same.

Thank you, Father, I will never be the same.

More to come. 🙂

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Where Our Adoption Stands

Don’t worry. Our plans haven’t changed (again).
As I told you last month, we’re still adopting. 🙂

Sorry I haven’t really updated you all on our progress lately.
I guess working through my mid-life crisis, and life itself, just got in the way.
There’s been a lot going on here at the Payne’s, I guess you could say.

November is National Adoption Awareness Month, so I figure it’s time to update you again!

I have some exciting news, though, on the adoption front!

If you didn’t catch it in last month’s update….

As of mid-September, we have an official, completed home study! 😀 😀 😀

This makes us officially “legal” and able to take a child, if one would be offered to us. In case you couldn’t already tell, this is a huge, huge deal and was a giant hurdle to cross.

Last time I checked, though, even if you’re legally able to say “yes,” to a child, it’s rather rare to just get called out-of-the-blue and offered the opportunity to parent one, not that it couldn’t happen if the Lord saw fit, though! 😉 

That being said, logistically, we’re making progress.
Not enough, though.
There’s still much work to be done. :/

To be completely honest, October wasn’t a fun month for me. I had grandiose hopes and dreams for the month with our call to fasting/prayer for our adoption, ones that (for the most part) did not come to fruition. When God wasn’t meeting my expectations for the month, I oftentimes struggled with feeling depressed, emotionally tired, confused, alone, and every other negative feeling the enemy tried to throw at me. I didn’t always stand firm on the promises of the Word. Many times, I let my circumstances, ones that weren’t changing fast enough for my liking, determine my level of joy instead of my confidence in Him and Him alone.  Many times, though I was participating in my own call for prayer and fasting, I wasn’t actively participating. Instead, I was just going through the motions, tapping my foot, waiting for Him to “just do something” because we were doing all that we could do and seemingly getting nowhere. Consequently, during those distracted times, I missed out on seeing what the Lord was doing in our midst, even if those things upon which He was working weren’t at all for what I had been praying so fervently and weren’t exactly fun to process.

You see, God certainly did move in October; it was just mostly in ways I hadn’t planned. In hindsight, I am reminded of the verse in Isaiah 55 (v.8) which tells us, ““For My thoughts are not your thoughts, Nor are your ways My ways,” declares the Lord.”

The Word tell us that man looks on the outward appearance, but the Lord looks on the heart (I Sam. 16:7). How does that relate to us?

The Lord showed me that oftentimes I, like most people naturally do in my situation, have been coming at the adoption from a purely logistical (“outward”) standpoint. After all, if you know anything about adoption, there are a lot of logistics to think about. When I wasn’t thinking about the logistics, I was thinking about our child and the awesome privilege and responsibility it is going to be to be their mother. Obviously, these were all good things on which to ponder. God, though, in His divine sovereignty and goodness, has been coming at it all along from a holistic standpoint. Moreover, because He so lavishly loves us and longs to reveal Himself to us, He has been thinking not only about not only our precious child and all the details that go with bringing them home to us but, just as importantly, about ME, about US, this whole time, too. 

Though we (especially I) couldn’t see it for the longest time, He hasn’t left us in the desert. We aren’t aimlessly walking around year-after-year, experiencing trial after trial, locked out of the “Promised Land” of parenthood because we’re being “punished” for whatever reason. No, He knows exactly what He is doing, and, contrary to the lies Satan would have me believe, His goal isn’t to break my heart; actually, it’s quite the opposite. No, before He allows us to enter the new “land” of parenthood, He sees the utmost importance in beginning to heal our hearts (in particular mine) first before He moves us elsewhere, especially into such an important season as the one upon which we are about to embark.

No, He isn’t purposefully withholding parenthood from me to torment me. No, instead, He longs for me, for us (individually and corporately), to feel whole before He moves us to a different, very challenging land. The Lord loves us, and our children, enough to tend to our hearts before He ever brings them into our lives.

Sure, He could have parted the waters by now and easily allowed all the tangible, logistical things to fall into place for us to be able to adopt. We could have been richly blessed with a child (or more than one) and going about our lives with our newborn(s) feeling extremely tired but blessed. He chose not to, however, because we never would have felt completely whole. Consequently, things never would have been completely as they should, and the Lord loves us too much to allow that.

He loves us too much to allow us to gain what we want tangibly but, in the process, settle spiritually and emotionally for much less than we could have with Him and with each other as husband and wife. He loves our children too much to leave their parents (i.e. us) as broken beings unable to fully embrace and appreciate our family for what it will be. All this time, He hasn’t been withholding from any of us but instead protecting us, and for that, I am eternally grateful.

Though I couldn’t say it much last month, I am so thankful for that fact. I am so thankful that God did not abandon us in October but instead was preparing and healing our hearts, in particular our marriage, in ways that are crucially important for the well-being of our family once we finally do become a family of three (or four 😉 ).

So, where do we go from here?

  • Well, we pray. And then we pray some more. We have extended our October month of fasting/prayer into November and would love to have your support in our efforts to be bathing our adoption in prayer. You can find an outline of our specific requests (which have been updated) by going here.
  • We refuse to lose heart.
  • As Charles Stanley would say, we “obey God and leave all the consequences to Him.”
  • We stand back in awe and wonder and watch Him move.

Lord God, thank you for how You’re moving. You are all we need.

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Filed under Adoption, grace, Marriage, Prayer, Purpose, Sanctification

8 Years: Reflections on Life Post-Transplant

“Now to Him who is able to do far more abundantly beyond all that we ask or think, according to the power that works within us, to Him be the glory in the church and in Christ Jesus to all generations forever and ever. Amen.”
Ephesians 3:20-21

“My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26

8 years.
2,922 days.
70,128 hours.
4,207,680 minutes.
252,460,800 seconds.

It’s been 8 years since I was wheeled through those double doors and taken back for my double lung transplant. It’s been 8 years since I said goodbye to a room full of family and friends, never knowing if I’d see them again this side of Heaven. It’s been 8 years since the Lord saw it fit to rescue me from my physical brokenness and save me from the brink of death in a matter of just 12 hours for my good, but most importantly, His glory. It’s been 8 years, but those years have been so very full, it feels more like a lifetime…and then some.

So much – so much more than I ever could anticipate – has happened since that time. It would take several blog posts to go through it all, but thankfully I’ve already written about much of it in my book, Breathtaking, as well as documented the most recent happenings here on the blog. If you only recently started following my story during the series on our adoption/surrogacy/miscarriage/adoption journey (thanks for reading, btw :)), I’d encourage you to get to know my life prior to 2013 through my husband’s and my book, if you get the chance.  It truly is a miraculous story of God’s sovereignty and goodness amidst human suffering, a story I could never, ever conjure up on my own in a million years. When I occasionally stop and read portions of the book, or even blog posts I have written this year, to remind myself of how faithful the Lord has been to me during my 27 years of life, I sometimes have a hard time believing that the person I’m reading is about me.

The ways in which I have seen God move in my life are staggeringly beautiful and constantly leave me face-down in a posture of humility before my King, as they should. On days like today, when the vivid memories come flooding back, and the tears fall like fresh rain, I am once again left speechless and so in awe of the work He has chosen to accomplish through me instead of choosing to take me Home years ago, which He so easily could have done. Words can never express my gratitude for the 8 years I have had to walk this earth. No matter how many more years I get, I have been blessed beyond measure to have had the fullness of life I have experienced since September 25, 2005. He didn’t have to practically raise me from the dead for Him to be sovereign or good. By His sheer nature, He can be nothing but those things and more. Friends, He didn’t “owe” me 8 more years, and He certainly doesn’t owe me any more.

He may not owe me any more, but I’m still a human. I still desperately want more time with the ones I love, especially my husband and my children, with whom I have yet to get to spend any time. If we’re truly honest with God, ourselves and others, we all want “more” of something. Whether that be something as simple as more understanding of why a life circumstance had to occur, more children, more money, more friends, more prestige, more whatever. At the end of the day, though, Jesus is asking us – is asking me – if we (I) ultimately only want more of Him, no matter if we get our desire for “more” ____.

That’s a hard pill to swallow (and believe me I’ve swallowed thousands of pills in my life), though, when more of Him may never mean more of the thing you so desperately want. You want the good news, though?

He promises He’ll always be enough.
Always. No exceptions – ever.

I wish I could say I live like I believe this 100% of the time. Like all humans, my finite mind has a hard time sometimes grasping why certain things have to happen. To be honest, 2005 was a lot easier for me than 2013 has been thus far. I know that will sound dramatic to some. It is what it is, though. I can’t really articulate for you all the ends-and-outs of exactly why that is. That is my reality, though, whether you (or I) understand it or not.

As I continue through my post-transplant journey, I admittedly struggle at times feeling like a ticking “time bomb.” In some ways, this feeling has gotten better as time as gone by; in others, it has become harder to escape. 8 years out, 1 year always feels like 5 years, if not more. In the beginning, 1 year would feel like a decade.

After all of these years, I think I’m finally starting to realize why:

The longer I live, the more people die who began their transplant journey around the same time as me (60-70%); that’s a fact of life I can’t change. I don’t have to be a slave to it, but I can’t hide under a rug and act like it doesn’t exist. Consequently, though I know beyond a shadow of a doubt God can choose to have me live another 50 years, time certainly doesn’t seem on my side. Just like an older person who most likely has lived at least 1/2 , if not much more of their life, I am left with not only a keen awareness of time but this insatiable desire to not only be a good steward of my time but also for more – lots more – of it in general. To not be enslaved to the awareness of life being but a vapor (James 4:14), I also have to daily (especially during this season of barrenness) give my desire for control over my time on earth over to the Lord, the One who numbered my days before time existed.

Don’t get me wrong. I’m a firm believer that being cognizant of time isn’t all a bad thing – hardly so. In fact, I believe (for me) having a healthy awareness of post-transplant patients’ life spans, and thinking through how your family is going to be taken care of if/when you’re gone and unable to be there for them, is not only the responsible thing to do but the Godly thing. That’s why I took the time to plan out my funeral 8 years ago when I was faced with the very real possibility of death. I refused to leave that difficult task on my parents to do with the help of my close friends, who also would have been grieving (though not as deeply) upon my death. My mom didn’t understand my reasoning for such planning at the time. Understandably so, she refused to take part in it. It had to be done, though; at least it had to be done for me, if even only for a few months, to live with a clear conscience. Even though  God had other plans for my life, and those written-out funeral plans were obviously never used, I know to this day I was obedient in doing it, even 8 1/2 years after sitting down with a group of people and planning out something that never came to fruition.

Now, 8 years, a loving marriage and Lord-willing soon-to-be, precious children later, my focus has shifted from my parents and close friends to my husband and children. My love for my parents hasn’t waned in the slightest (in fact, it has grown as I prepare to be a parent myself), but my priorities have changed and rightfully so. I still want more time with my parents, other immediate family and friends, of course. After all I had been through, I had no idea how much marriage, and the oneness (spiritually, emotionally and physically) that comes with it, would change the way I process time. After my surgery, I was made aware of how precious time truly is, but my urgency for spending my time well has only been heightened since marriage. I’m sure it will become even more sensitive once our children are here. Now I just don’t think about how I’m spending my God-given time and what type of legacy I am leaving. I also have a  physical longing to be a good steward of my time with my spouse and kids. I daily long to “redeem the time” we have with one another. I’m consciously aware that my days with them are (most likely) fewer than we all would like and for which we would ask, and that knowledge changes the way I view everything.

To illustrate my point, I’ll give you an analogy:

Sometimes I feel as if I am standing within an hourglass made of impenetrable glass, which is quickly burying me with sand, i.e. lost time.

As I look out at 99% of the world, in particular those my age, I see those whose glasses seem to be pouring much more slowly than mine. They are standing only knee-to-waist deep in their sand and hardly aware of the urgent feeling they, too, will one day feel to “redeem the time.” For most of them, that realization of their finiteness will come many years later in their journey called life. Due to feeling as if they, even those older than me, “have all the time in the world,” I see mostly a generally worry-free attitude when it comes to redeeming their time left on Earth.

As for me, no matter what the speed of others’ glasses, or how hard I try to move at their speed, I can’t crack the glass or slow down my sand. As a result, I continue to be (or feel as if I a being) swallowed up at a much faster rate than the vast majority of my peers. Those who are my age, including my own spouse, are naturally more concerned with their grandparents’ and parents’ hourglass at this point in their lives than their own.

As Christians, weasily say that none of us are guaranteed tomorrow. Most of us are planning on easily living at least 70-80 years, though, because that’s what statistics tell us we’ll most likely get.  In the process of living all of those years,  it’s easy to lose sight of the beauty and importance of redeeming ever single day, even the mundane ones. It’s easy to “bank” on things happening in life for you (whether graduating from college, marriage, having children, succeeding in your career, retirement, etc.), because after all, that is the natural trajectory of the vast majority’s lives. Furthermore, as people are moving through life and its natural ebbs and flows, most don’t consciously take their finite nature to heart, at least not every single day. This is especially true of those living within the first half of their natural lifespan.

People don’t consciously think about their own hourglass until tragedy strikes.

A few times in life, one will inevitably be rocked to the core and left to deal with a loved one’s mortality. This uneasiness is most likely first felt through the death of grandparents, in particular a close grandparent. Usually, after the initial blow (through the death/sickness of whomever is closest to them — usually the oldest loved ones still living at the time), life eventually returns to “normal.”

When tragedy strikes the younger (peers, spouses, children), however, it tends to “wake people up” a little more than when the elderly pass. Depending on how close and young the dead loved one was, the sting of death seems a little deeper, because all of us (no matter our religious affiliation) know the young aren’t “supposed” to pass away. We feel the effects of the Fall a little more during those tragic times.

Still, the formative life-changes that come from these times of grief, even in its most tense form, usually do not fully garner our attention to our own life clock. Even after the gravest of situations, the urgency to “redeem the time” wanes until the next tragedy, which starts the process all over again for a few days, months, or possibly a few years. 

Most of our lives are not lived under the part of the mantra that says “for tomorrow we die” but instead the former part, which says “live, drink and be merry.” And so we do. Like the old Tracy Lawrence song says, “time marches on,” and it does so without much thought from us most of the time.

Eventually, though, everyone starts to acknowledge their “sand.” After usually a very long, full life, people “suddenly” become aware of their hourglass filling up. They seem shocked and act as if it happened just overnight. As we all know, though, aging,  and consequent loss of time, is a natural progression; it is one that occurs whether we pay attention or not. Some life events, such as illness or a major birthday milestone, just make us more aware of that fact. Major life changes, such as graduating high school or college, getting married, having children, a mid-life crisis, or retirement can also remind us, at least for a bit, that life is indeed moving along.

Eventually, not only do people have to come to grips with time passing, they are faced with their pending death – the end of their “sand” falling – whether they’re ready or not. Psychology experts will tell you that it is during the last years of one’s own life, that deep reflection on one’s own life occurs for the first time for the majority of the human race. Some are eased into this pattern of thinking very slowly and reflect on-and-off for two or more decades before their demise. Others, however, are shoved forward into dealing with their mortality in a more tangible way when they are suddenly diagnosed with a severe illness (such a cancer or heart disease), diagnoses which can even come with a possibility of death for some. For many individuals, due to lack of self-actualization throughout most of their lifetime, oftentimes this period of end-of-life reflection brings up past regrets and disappointments in their personal, professional lives and even spiritual lives. It can conjure up feelings of  past hurt and shame and cause one to feel the consequences of the weight associated with a lack of fulfilled dreams, forgiveness for oneself and/or others, or a pattern of disobedience to God. Sadly, for some (even Christians who are confident in their eternal home), the darkest period of their life is the very end of their life – a very, very sad fact, if you ask me.

Whether we’re ready or not, whether we are at peace or not, the fact is this: We all die.

The question is this: Are we going to not only die well, but more importantly, live well? Are we going to live with conviction for the glory of King, the Author and Finisher of our faith, or are we to try be the masters of our own fate until that no longer works for us?

 Fast pouring glass or not, whether we choose to acknowledge our glass throughout life or not, in order to have peace, Jesus still has to be enough – in all things.

He has to be enough in life and in death. He is the Keeper of the glass, after all. He is the One who determines the number of our days, not us or a statistician who promises us far more, or maybe far fewer, days than we will actually live.

For me, that means a desire for more of Him has to be more than my desire for more time. On a tangible level, that means daily balancing the tension I feel to not focus so intently on my hourglass I feel paralyzed, but to be responsibly aware of its contents, nonetheless. That daily tension causes me to be cognizant of our finite nature, and therefore wanting to live my life to the fullest, but also wanting to be capable of relaxing and enjoying life while I have it, too. Some days, I walk the mental tight rope better than others.

Bottom line: I have to balance my keen awareness of the time at hand (which is a unique gift I’m thankful to have) with also a permission for myself to join the others and, at least in a way, “live, drink and be merry,” as long as I’m doing it for the glory of my King. After all, I’m not dead yet. 😉

Thank God, I’m not dead yet. 🙂


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Filed under Breathtaking, cystic fibrosis, grace, Health, Life, Marriage, Purpose, Sanctification, Simplicity, Transplant

Joy Through Infertility – Another Perspective

Sorry it’s been a while.
I really wasn’t planning on being gone so long.
Then life – lots of it – happened.
One day here soon, we’ll get to (most) of that. Promise. 🙂
If you need to catch up on our journey, now is the time.
Things will move faster from here, Lord-willing.

For the time being while I sort out this new season of life, I wanted to share with you a powerful piece I read today by one of my favorite writers, Holley Gerth. Even though I’ve never met her (or honestly talked to her), I absolutely adore her transparency and was extremely blessed when I read this today.

Thank you for your heart, Holley. It is astonishingly beautiful.

I’ll be back soon to update you on where we are in our ever-changing journey to parenthood; exciting things are happening! God is faithful. 🙂

When God Changes Your Plans {An Infertility Update}

Nurture Bracelet by Lisa Leonard

Nurture Bracelet by Lisa Leonard

Friends, this post has been a long time coming. And I’m going to ask for your grace in advance. Because it makes me knocking-knees nervous to write it. Infertility is such a personal subject for many different reasons besides the obvious. But enough of you have asked and I’ve done enough praying that I just want to give you an update.

Before I start I want to include this disclaimer: If there’s one thing I’ve learned on this journey it’s that everyone’s story is different. What I’m sharing applies to my hubby and I alone.

When Mark and I married in 2000 we thought starting a family would be easy for us. Doesn’t everyone? When we officially began the process to become parents about five years later, we soon realized that wouldn’t be the case for us. Long story short, we went through years of grief, loss, doctor’s appointments and some serious wrestling with God. Out of that process came my first devotional book, Rain on Me {recently released in a new edition as Under God’s Umbrella}.

During that time, over seven people on separate occasions prayed over me that “God would bring new life through my words.” I tucked each of those statements away in my heart, not sure what they meant. God provided many other instances where he used people, even women I didn’t know, to speak into my life that I was not barren. And one day I looked at the Scripture passage about Eve who was called “the mother of all living” and I knew in my heart that every woman is a mama. Yep, every single one of us brings life into the world in some way.

And mine was not going to be through physical kiddos.

It took me years to even dare to whisper that to the closest people in my life. Our culture is so focused on physical family that it felt scandalous–and possibly unchristian–even to speak those words out loud. When I began to, the response was usually, “Have you ever thought about adoption?” The answer: Yes, of course we had. We had thought, prayed, wrestled with it. And yet we never felt like God was directing us that way. That was also an extremely difficult decision in a generation that is passionate about adoption {and rightly so!}.

From time to time I would ask God again, “Are you sure we’re on the path you want us on?” And inevitably within twenty-four hours someone would send me a note saying, “I’m not sure why I’m sending you this but I think God wants me to tell you you’re already a mother.” Truly. I wrote every single time that happened in my journal.

So I’m here, friends, almost ten years from the time we started this journey. And I want to tell you this: my heart is healed, my life is full, and I’m a word mama to the hearts of thousands of women around the world. I’m truly, deeply blessed.

We could have gone out and found a way to get a baby. We live in a culture where we can make that happen. And it would have done away with a lot of the hard questions we’ve had to answer the last few years. But if we had, it would not have been God’s best for us. I would have been like Sarah and whatever option I chose would have been my Hagar.

So I’m officially announcing that our infertility journey is done. We are in a new season–one of so much life, growth, and joy. One I wouldn’t have chosen but now wouldn’t trade because as David said in the Psalms “better is one day in your courts than thousands elsewhere.” In other words, I want to stay in the center of God’s will. I trust him to continue filling the mama-longing in my heart {Ps. 84:11}. I trust him to take care of me when I’m old {Is. 46:4}. I trust him to have a plan that is greater than mine {Rom. 8:28}.

And in that I can rest.

Even more than rest, I can rejoice.

It is well with my soul.

I am a mother. And it is good.

XOXO

Holley

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Filed under Adoption, grace, Miscarriage, Redeeming Loss, Sanctification

Why We Halted Our Adoption: The Answers – Part 21

You weren’t the only one who thought we’d never reach the final post in this series. It’s been a long haul, full of the highest mountain top experiences and the lowest emotional valleys, but we made it. 🙂

Let us review: Why did we halt our adoption?

The simplest answer is because we cannot afford to pursue adoption and surrogacy at once.
*For more on why we before 3 weeks ago we never dreamed surrogacy would be an option,  and how we were both finally at peace with moving forward with our adoption plans, please see Part 1.
*For more on the Facebook message I received 3 weeks ago from practically a perfect stranger that would rock anyone’s world, please see Part 2.
*For more on our surprisingly spirited 1st reaction to that message, please see Part 3.
*For more on the questions we both had, and the emotional struggle I went through, once the surrogacy option was presented to us, please see Part 4.
*For more on the initial, God-filled meeting I had with the woman who strongly felt God may very well be calling her to be our surrogate, please see Part 5.
*For more on the extremely disheartening news we received the day after I met with the woman who appeared to be an angel sent by God to carry our biological child, please see Part 6.
*For more on the strange, but strong, intuition I was feeling just a little over a week after our dream of surrogacy seemed to be slipping from our hands, please see Part 7.
*For more on all the signs that just weren’t going away and ultimately pointing to my intuition being most likely true, please see Part 8.
*For more on the dramatic turn of events that took place one early morning, please see Part 9.
*For more on the painful drive, and then wait at the hospital, I endured while waiting to hear if my intuition was true, please see Part 10.
*For more on the internal conflict I felt when I found out my intuition was wrong, please see Part 11.
*For more on the decision I made to go seek a second doctor’s opinion on what had (or hadn’t) happened, please see Part 12.
*For more on how we found out we had actually miscarried our baby, please see Part 13.
*For more of how the miscarriage affected me emotionally,  and why I chose to share my grief, please see Part 1, Part 2 and Part 3 of my “Redeeming Miscarriage” series.

*For more on the messiness of life, in particular my life, please see Part 14.
*For more on a new, mysterious word that was going to affect my life, please see Part 15.
*For more on the possible reasons why I was suddenly not in the best of health, please see Part 16.
*For more on my two days of testing to try to figure out the problem, please see Part 17.
*For more on the uncertainty that came with the initial results, please see Part 18.
*For more on the time I spent waiting to know our future, please see Part 19.
*For more on a sudden, unexpected change, please see Part 20.
_____________
Numbers talk, and mine had just decided to finally find their voice.

Just a few minutes prior, I was astonished to learn that a few months ago, the predictors used to measure our pulmonary function tests had made a rare and sudden change. This change was so rare, nothing like it had occurred since I started going to that hospital almost 9 years ago. Furthermore, if measuring my past few tests according to the old standards, the lowest my lung function had measured during all of this uncertainty was 97% – a number I had seen many times since my transplant in September 2005, instead of 92% That day in mid-May, it was actually sitting at 99%, a number just as high as it had been in September last year.  No, it wasn’t over 100%, but when you are trying to figure out what exactly is going on and every % is being scrutinized, having 99% (my normal is 98%-105%) of my lung function instead of 95% (what the new standards ranked me at that day), was a huge, huge deal.

Walking into the transplant clinic, re-calculated numbers in hand, I still didn’t know why this change hadn’t been taken into consideration, but I was about to find out. I was a woman on a mission. I wanted answers, and I wanted them now. I was sure there was a reasonable explanation. I just couldn’t come up with one off the top of my head.

I didn’t need answers just about my pulmonary function test.
I needed answers about my antibodies.
I also needed an answer on whether or not I was pregnant.
It was going to be an eventful visit.

I got all checked in, had my vitals taken, and got settled in my spacious patient room. It wasn’t long before my nurse, Kerri, came in and got the visit started. I really like Kerri. We get along quite well. She asked me the usual questions, told me about her weekend, and listened to my findings in regards to my pulmonary function tests. She seemed intrigued but clearly didn’t want to say much. She and I both knew Dr. Kirby was the one with whom to speak about this issue.

He wasn’t too far in timing behind her and, like usual, showed up relatively quickly. Unlike usual, another doctor was with him, tagging along to learn more about the never-dull world of lung transplantation. I had nothing against the guy, but I wasn’t really wanting to “confront” my beloved doctor in front of a complete stranger. I didn’t want to make him look bad in front of his colleague, but I had some things I had to say. Even though we had unexpected company, my curiosity couldn’t wait.

For the next several minutes we went over what I knew at that moment compared to what I knew when I drove into the parking garage approximately two hours ago. The poor doctor who came with Dr. Kirkby just silently stood in the corner while we discussed the ends and outs of pulmonary function tests and the change that, as far as I could tell, hadn’t been considered when analyzing my data since the miscarriage.

I asked extremely pointed questions, and like I expected, I got extremely honest answers. No, the sudden change hadn’t been taken into consideration. It was what it was. You can’t change the past. On the other hand, even if my lung function hadn’t undergone as large of a percentage change as first suspected (which was a very good thing), there still had been a change, a change worth investigating with everything else going on. Yes, the number had gone back up, but even if you used the old standards, it still wasn’t my highest reading recorded since my transplant. When you have antibody issues, it is better to be safe than sorry, after all.

Furthermore, the bronchoscopy would have still been necessary with all the antibody issues I was currently experiencing, since I hadn’t had any biopsies taken in 6 years; that’s like a lifetime in the transplant world. At that point, the pH probe test I also did 6 weeks prior wasn’t explicitly labeled “necessary,” but at least it was now done and showed I wouldn’t need surgery anytime soonIt wasn’t worth focusing on whether or not I should have done it. It was over. Bottom line, we were all thankful my lung function was up from 6 weeks ago and also higher the two times before that day than previously thought. For the sake of clarity, we agreed from now on, we would use the actual reading instead of the % any time my test results were discussed, in case of any more sudden changes in the predictors in the future.We agreed to be thankful and move on.

After months of uncertainty and so much emphasis on a percentage of lung function that never even existed, it wasn’t exactly the explanation I wanted to hear, but I accepted it and still loved my doctor just as much as before. I guess when you have been shown so often how much your doctor and your team care for you, when you’ve felt less than comfortable with – or genuinely cared for by- other physicians over the years, it’s easier to “forgive” oversights from those whom you trust. Yes, some unnecessary worry over my lung function could have been avoided. It didn’t matter, though. Unfortunately, all was not now right with the world. I still had a major antibody issue, one that was more than likely caused by the miscarriage and a serious issue, no matter what “system” you used to measure my lung function.

What I didn’t have, though, was a positive pregnancy test. Thank you, Lord!

Since we no longer had to worry about me being with child (still not sure why I was so whacked out) and my lung function was once again completely normal, our focus was once again on my antibody level.

Thankfully, the good news just kept on coming.

I was also informed that my former doctor, Dr. Astor, who had been in charge of my case from the first time I set foot into that hospital when I was 18 (2004) up until 2010 had been consulted about my antibodies and given his opinion.

“Don’t treat at this point,” was his answer.

Better yet, that was his answer even before the change in predictors for the pulmonary function test was even broached.

Though some in his field would disagree with him, with no signs of antibodies in my lungs, and my lung function so incredibly high, he didn’t find treatment necessary. Trusting his years of experience, Dr. Kirkby agreed with him. Consequently, as long as my numbers didn’t come back sky-high this time around, he made that sentiment his recommendation, as well.

If the numbers were still rapidly climbing, we’d just re-evaluate.
I was sent home to wait – again.

2 days later, my new antibody readings came back.

37% was my new measurement – only 2% higher than 6 weeks before. The numbers thankfully weren’t doubling anymore. No treatment was needed. I wouldn’t need to be seen for 3 months, and then we’d test again. We weren’t too worried at this point, though, since my lung function had gone up, I hadn’t shown any signs of rejection, and there were no antibodies in my lungs. For the first time in over 4 months,  I was free to go back to life as normal. Let me tell you. After everything we had been through the past several months, “normal” never sounded so, so good.

The End…of this chapter, at least. 😀

A new series to come on our plans to move forward with our family. You don’t want to miss it. 🙂

*John and I could never say thank you enough to those of you (strangers and friends alike) who have prayed us through this journey. Your love and support means more to us than you will ever, ever know.Whether you choose to continue to follow my blog or not, please keep those prayers coming! Thank you for giving us the privilege of seeing the body of Christ at work in such a beautiful, inspiring way. Though we never would have imagined what all 2013 would entail (thus far), we are so thankful that, though our circumstances have been far from consistent, not only has He remained constant but so have the prayers of the Saints. We love you all.

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Filed under Adoption, cystic fibrosis, grace, Health, Life, Miscarriage, Transplant

Why We Halted Our Adoption: The Change – Part 20

I’d know in a matter of a few hours if not only my antibodies and lung function were still out of control. I would also know if I was most likely soon going to be experiencing déjà vu and consequently making my health situation even more complicated with a second pregnancy.

I just wasn’t sure if I was ready to hear all of those answers
Too late. Ready or not, answers were coming.

Let us review: Why did we halt our adoption?

The simplest answer is because we cannot afford to pursue adoption and surrogacy at once.
*For more on why we before 3 weeks ago we never dreamed surrogacy would be an option,  and how we were both finally at peace with moving forward with our adoption plans, please see Part 1.
*For more on the Facebook message I received 3 weeks ago from practically a perfect stranger that would rock anyone’s world, please see Part 2.
*For more on our surprisingly spirited 1st reaction to that message, please see Part 3.
*For more on the questions we both had, and the emotional struggle I went through, once the surrogacy option was presented to us, please see Part 4.
*For more on the initial, God-filled meeting I had with the woman who strongly felt God may very well be calling her to be our surrogate, please see Part 5.
*For more on the extremely disheartening news we received the day after I met with the woman who appeared to be an angel sent by God to carry our biological child, please see Part 6.
*For more on the strange, but strong, intuition I was feeling just a little over a week after our dream of surrogacy seemed to be slipping from our hands, please see Part 7.
*For more on all the signs that just weren’t going away and ultimately pointing to my intuition being most likely true, please see Part 8.
*For more on the dramatic turn of events that took place one early morning, please see Part 9.
*For more on the painful drive, and then wait at the hospital, I endured while waiting to hear if my intuition was true, please see Part 10.
*For more on the internal conflict I felt when I found out my intuition was wrong, please see Part 11.
*For more on the decision I made to go seek a second doctor’s opinion on what had (or hadn’t) happened, please see Part 12.
*For more on how we found out we had actually miscarried our baby, please see Part 13.
*For more of how the miscarriage affected me emotionally,  and why I chose to share my grief, please see Part 1, Part 2 and Part 3 of my “Redeeming Miscarriage” series.

*For more on the messiness of life, in particular my life, please see Part 14.
*For more on what I never told you had happened after the miscarriage, please see Part 15.
*For more on the possible reasons why I was suddenly not in the best of health, please see Part 16.
*For more on my two days of testing to try to figure out the problem, please see Part 17.
*For more on the uncertainty that came with the initial results, please see Part 18.
*For more on the time I spent waiting to know our future, please see Part 19.
_________________

Surprisingly, my transplant nurse, Ashley, stayed calm while I told her about my possible second conception. No, you can’t make this stuff up. 

I made sure she knew I didn’t think I was pregnant. I had no idea at that point. With the strangeness going on, though, there certainly was a possibility, at least in my mind. I wasn’t convinced either way, but I knew well enough that I needed to be cautious and not just play a “wait and see” game. She agreed and ordered the HCG blood test, the exact same test that didn’t do me any good last time due to the type of “chemical” miscarriage I had. I knew this time, though, I was testing much sooner. As a result, if I really was pregnant, the test should work; we would catch the hormone in time before it, if things went like last time, rapidly dispelled from my body.

To be honest, walking into the lab to give my multiple viles of blood, whether or not I was pregnant again was the least of my worries. It was what it was. There was nothing I could do to change it at that point. Worrying myself to death for the next 2 hours wasn’t going to do any good. We certainly weren’t trying to conceive again. We hadn’t been the last time, either. We were using protection and still ended up “scoring a goal,” so anything was possible. I could definitely see it going either way and was learning toward it coming back negative. Please, Lord?

While my blood left my body and filled the tubes of all shapes and sizes, I kept my mind focused on the fact that God was still going to be sovereign and good, no matter the outcome of the test. He was still going to be sovereign and good, even if I lost another child. He was still going to be sovereign and good, even if I had to go into treatment for the antibodies and felt crummy the rest of the summer. He was still going to be sovereign and good, even if I went into rejection and lost my life because of one, or more, unplanned children. He wouldn’t change, just as He has remained the same since before the foundations of time.

I had my battled wound dressed and took the elevator up to do my pulmonary function test, since if I was pregnant, I was skipping my chest x-ray. The number of times I would do the tests was going to be determined by how things were going after 2 or so tries. Once I got there and settled, I was ready to battle myself. My competitive nature hadn’t waned since the last time I had blown through the device over and over again. Last time I was never satisfied with the numbers that popped up on the screen. After 1 blow, I knew things were going to be different this time around. I could feel it. After much fewer attempts, I settled with getting 95% instead of 92%. I could have continued to repeat the test, but I wasn’t in the mood. I was satisfied with my efforts. The main number wasn’t a huge improvement, but it wasn’t another decrease! We were moving in the right direction. Lord-willing, I wasn’t pregnant again, and my antibodies were recovering, as well.

Right before I grabbed my stuff to go, my respiratory therapist said something that would change everything.

I don’t remember her exact question, but it was something to the effect of, “Did the new standards cause your numbers to go up or down?” Confused, I responded, “New standards?”

It took her only five minutes to explain to me that a few months ago, the predictors used to measure our pulmonary function tests had made a rare and sudden change. This change was so rare, nothing like it had occurred since I started going to that hospital almost 9 years ago. 

Speechless, I let her continue. After we printed off my last 4 tests (spanning back to September 2012), we discovered that what was set as the standard for receiving a 100% had now been raised, at least for me. Now both of us were intrigued. So much so that we manually went back through and re-calculated under the old standards (the ones I had been tested under hundreds of times) my last two tests (April 1 – the day my miscarriage started & 1 in Mid-May) and learned that under the old standards, since the miscarriage, my lung function was neverever at 92%.

In fact, the lowest it had been measured during all of this uncertainty was 97% – a number I had seen many times since my transplant in September 2005. That day in mid-May, it was actually sitting at 99%, a number just as high as it had been in September last year.  No, it wasn’t over 100%, but when you are trying to figure out what exactly is going on and every % is being scrutinized, having 99% of my lung function instead of 95% (what the new standards ranked me at that day), was a huge, huge deal. 


Immediately, I felt a million weights lift from my shoulders, yet was in so much shock, I didn’t know if I could move. I had to move, though, because I couldn’t wait to go to clinic, calculations in hand, and
speak with my team about my incredible findings.


During my walk to the other side of the hospital, whether or not I was pregnant was the furthest thing on my mind. What had just occurred was all I could think about. As I re-played the previous 10 minutes in my mind, I admittedly had an obvious question – “Why was this change not taken into consideration?” After literally months of uncertainty, I was thrilled with, but also deeply confused by, my new-found results. Was this going to change everything? I was about to find out.

Part 21 to come!

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Filed under Adoption, cystic fibrosis, Health, Marriage, Miscarriage, Transplant

Why We Halted Our Adoption: The Wait 2.0 – Part 19

If you would have told me during the miscarriage what was ahead of me when it was over, I couldn’t have handled it. The grief over losing our child, after everything else that had already occurred in a short amount of time, seemed like more than enough for one person to bear. I’m not one to feel sorry for myself, but at that point, even I was crying “uncle.” Little did I know when I wrote Part 13 of this series what the next few months would entail.

Let us review: Why did we halt our adoption?

The simplest answer is because we cannot afford to pursue adoption and surrogacy at once.
*For more on why we before 3 weeks ago we never dreamed surrogacy would be an option,  and how we were both finally at peace with moving forward with our adoption plans, please see Part 1.
*For more on the Facebook message I received 3 weeks ago from practically a perfect stranger that would rock anyone’s world, please see Part 2.
*For more on our surprisingly spirited 1st reaction to that message, please see Part 3.
*For more on the questions we both had, and the emotional struggle I went through, once the surrogacy option was presented to us, please see Part 4.
*For more on the initial, God-filled meeting I had with the woman who strongly felt God may very well be calling her to be our surrogate, please see Part 5.
*For more on the extremely disheartening news we received the day after I met with the woman who appeared to be an angel sent by God to carry our biological child, please see Part 6.
*For more on the strange, but strong, intuition I was feeling just a little over a week after our dream of surrogacy seemed to be slipping from our hands, please see Part 7.
*For more on all the signs that just weren’t going away and ultimately pointing to my intuition being most likely true, please see Part 8.
*For more on the dramatic turn of events that took place one early morning, please see Part 9.
*For more on the painful drive, and then wait at the hospital, I endured while waiting to hear if my intuition was true, please see Part 10.
*For more on the internal conflict I felt when I found out my intuition was wrong, please see Part 11.
*For more on the decision I made to go seek a second doctor’s opinion on what had (or hadn’t) happened, please see Part 12.
*For more on how we found out we had actually miscarried our baby, please see Part 13.
*For more of how the miscarriage affected me emotionally,  and why I chose to share my grief, please see Part 1, Part 2 and Part 3 of my “Redeeming Miscarriage” series.

*For more on the messiness of life, in particular my life, please see Part 14.
*For more on what I never told you had happened after the miscarriage, please see Part 15.
*For more on the possible reasons why I was suddenly not in the best of health, please see Part 16.
*For more on my two days of testing to try to figure out the problem, please see Part 17.
*For more on the uncertainty that came with the initial results, please see Part 18.

___________
Waiting. That is pretty much all I got done health-wise for well over 2 months. To say it was a test on my faith and my patience, as well as John’s, is an understatement. There was nothing else we could do, though. It was our cross to bear . Just when we thought answers were just around the corner, we waited, and then we waited some more.

In the meantime, we tried to operate as if life were normal. Thankfully, the whole time I felt absolutely fine, so trying to go about life really wasn’t that difficult. We weren’t fooling ourselves very well, though. No matter what you say, life isn’t normal when you’re sitting around waiting to hear if you have to undergo major treatment. Due to the indecision, we couldn’t move forward with our family plans while we waited. I couldn’t guarantee my employer I wouldn’t be taking significant time off soon. I couldn’t promise my sweet friend that I wouldn’t be a sickly-looking bridesmaid.

I think of one of the hardest things, though, is I couldn’t even fully process all the emotions from the miscarriage, since my health had seemingly been suddenly hijacked since our loss and therefore demanded my time and attention. If you followed it, in my “Redeeming Miscarriage” series, I did do my best to be honest with myself (and you) about my grief. Now that you know what was really going on at that time, though, could you understand how emotionally spent and conflicted I truly was? I loved the Lord, and I believed strongly in His sovereignty and goodness, even amidst my suffering, but I was still human and very much feeling the effects of  living on this fallen earth. 

I had to be on constant guard for the enemy’s attacks. I was weak, and he knew it. If I wasn’t careful, I was either coveting my friends’ families, or wallowing in self-pity for my lot in life. I was either partly upset I ever even conceived a child, or extremely upset thinking about John getting to marry and have a family with another woman after I die due to us unexpectedly conceiving our biological child, who also died. Yes, I realize that last example is slightly dramatic, but when you live my life, you know that dying before your spouse, and him re-marrying, most likely is your reality; my current situation just brought to surface the emotions that surround that probable fate, emotions to which most could never relate.

There were also those nagging questions that plagued me late at night. “When is enough, enough?” “Lord, is it wrong to want to glorify You through “normal” life, instead of through trial after trial?” “Am I really going to end up dead after all of this?” “Will John resent me, if I do?”

For the first time in a long time, I felt like I was going to break under the pressure of life. I longed to go back to January 1, 2013 and re-start the year. I longed to go back to when were just going to adopt and be done with it. I couldn’t turn back the hands of time, though. I had to live in my present reality, and that reality was filled to the brim with uncertainty.

Answers were finally promised toward the end of June.

The miscarriage had happened the first week of April. I was first approached about there being a problem the end of that week. Over two-and-a-half months later, I was ready to know the direction in which my life was going. I was ready to know if motherhood was in my immediate future, or if I was once again going to have to put my desire for a family on the back burner and deal with more pertinent, life-threatening issues. I didn’t know what was ahead of me that day I once again drove down to Columbus, but I knew that I was coming home with answers; after weeks and weeks of waiting, that was enough for me. 

Going into another day of testing that Monday, I did thankfully already have one good piece of news. I would not need the dreaded Nissen surgery! Praise God! Neither my doctor nor the GI doctor were convinced that the decline in pulmonary function was being caused by any acid issues. All of my 51 “episodes” of “silent” reflux had occurred very low in my esophagus, which meant that it wasn’t a danger to my lungs. As excited as I was about keeping my ability to throw up (you would be, too!), I also knew that meant there had to be another reason why my lung function had decreased; namely, most likely that was because of the antibodies. We had waited several weeks to re-test them to give them time to either stabilize out or show that they were going to continue to rise. If they continued to rise, and my lung function continued to go down, I knew treatment was inevitable. 

I also had another problem and another secret. I was afraid there was a chance I was pregnant – again.

I hadn’t missed my period (yet), but my body certainly wasn’t acting “normal.” I was having a few of the same pregnancy-like symptoms I had before the miscarriage. I wasn’t having nearly as many as when I actually was pregnant, but I wasn’t far enough along in my cycle at that point for the majority of them to start making their appearance. I had purchased a few pregnancy tests that weekend, took them a few mornings, and thankfully found them all to be “negative.” I just didn’t feel right, though. I knew the chances of having a false negative before your missed period were extremely high, though, so I didn’t have much confidence in my $3 pee sticks. I also knew that your hormones can cause bodily changes after miscarriage, so I took that possibility into account, too. I didn’t understand why those wouldn’t have occurred right away, but “blaming” my new-found weird cycle on hormones made me feel better. In all my life, though, I had never had such strange things occurring other than the time I was pregnant, and it was only after the fact last time that I put two-and-two together. Last time, I hadn’t even began to think I was pregnant at that point, so trying to decipher if I was again or just being paranoid was difficult at best. What was occurring wasn’t the exact same as just 3 months prior, but it certainly wasn’t my “normal,” either. I was also very aware of my hyper-sensitivity to things of this nature after the miscarriage. I knew my mind could actually be playing tricks on me this time, instead of warning me like last time. After all, like I said, I wasn’t exhibiting nearly all the symptoms I had before, but then again, I hadn’t given myself the time to be showing them, either.

I wasn’t feeling like the Lord was telling me I was pregnant like last time, but I wasn’t feeling like He was telling me I wasn’t, either. I felt He was silent on the issue, which didn’t help me feel any better. John was skeptical. One minute he didn’t believe I could possibly once again be with child, and the next he was wondering if lightening had indeed struck us twice. I felt conflicted, too.  One minute I felt calm about things, and the next I felt overwhelmed and scared. That morning, though, I was completely at peace, which even shocked me. The Lord must have known my emotional limits. I couldn’t sit around like last time and wait to find out what was going to happen, though. I had to know, and I had to know now. Waiting wasn’t an option.

Just like last time, during my commute down, I picked up the phone and let my transplant team know that morning I would need yet another blood draw for a HCG level. I’d know soon if my antibodies and lung function were still out of control. I would also know if I was most likely soon going to be experiencing déjà vu and consequently making my health situation even more complicated. I just wasn’t sure if I was ready to hear all of those answers.

Part 20 to come!

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