Why We Halted Our Adoption: The Answers – Part 21

You weren’t the only one who thought we’d never reach the final post in this series. It’s been a long haul, full of the highest mountain top experiences and the lowest emotional valleys, but we made it. 🙂

Let us review: Why did we halt our adoption?

The simplest answer is because we cannot afford to pursue adoption and surrogacy at once.
*For more on why we before 3 weeks ago we never dreamed surrogacy would be an option,  and how we were both finally at peace with moving forward with our adoption plans, please see Part 1.
*For more on the Facebook message I received 3 weeks ago from practically a perfect stranger that would rock anyone’s world, please see Part 2.
*For more on our surprisingly spirited 1st reaction to that message, please see Part 3.
*For more on the questions we both had, and the emotional struggle I went through, once the surrogacy option was presented to us, please see Part 4.
*For more on the initial, God-filled meeting I had with the woman who strongly felt God may very well be calling her to be our surrogate, please see Part 5.
*For more on the extremely disheartening news we received the day after I met with the woman who appeared to be an angel sent by God to carry our biological child, please see Part 6.
*For more on the strange, but strong, intuition I was feeling just a little over a week after our dream of surrogacy seemed to be slipping from our hands, please see Part 7.
*For more on all the signs that just weren’t going away and ultimately pointing to my intuition being most likely true, please see Part 8.
*For more on the dramatic turn of events that took place one early morning, please see Part 9.
*For more on the painful drive, and then wait at the hospital, I endured while waiting to hear if my intuition was true, please see Part 10.
*For more on the internal conflict I felt when I found out my intuition was wrong, please see Part 11.
*For more on the decision I made to go seek a second doctor’s opinion on what had (or hadn’t) happened, please see Part 12.
*For more on how we found out we had actually miscarried our baby, please see Part 13.
*For more of how the miscarriage affected me emotionally,  and why I chose to share my grief, please see Part 1, Part 2 and Part 3 of my “Redeeming Miscarriage” series.

*For more on the messiness of life, in particular my life, please see Part 14.
*For more on a new, mysterious word that was going to affect my life, please see Part 15.
*For more on the possible reasons why I was suddenly not in the best of health, please see Part 16.
*For more on my two days of testing to try to figure out the problem, please see Part 17.
*For more on the uncertainty that came with the initial results, please see Part 18.
*For more on the time I spent waiting to know our future, please see Part 19.
*For more on a sudden, unexpected change, please see Part 20.
Numbers talk, and mine had just decided to finally find their voice.

Just a few minutes prior, I was astonished to learn that a few months ago, the predictors used to measure our pulmonary function tests had made a rare and sudden change. This change was so rare, nothing like it had occurred since I started going to that hospital almost 9 years ago. Furthermore, if measuring my past few tests according to the old standards, the lowest my lung function had measured during all of this uncertainty was 97% – a number I had seen many times since my transplant in September 2005, instead of 92% That day in mid-May, it was actually sitting at 99%, a number just as high as it had been in September last year.  No, it wasn’t over 100%, but when you are trying to figure out what exactly is going on and every % is being scrutinized, having 99% (my normal is 98%-105%) of my lung function instead of 95% (what the new standards ranked me at that day), was a huge, huge deal.

Walking into the transplant clinic, re-calculated numbers in hand, I still didn’t know why this change hadn’t been taken into consideration, but I was about to find out. I was a woman on a mission. I wanted answers, and I wanted them now. I was sure there was a reasonable explanation. I just couldn’t come up with one off the top of my head.

I didn’t need answers just about my pulmonary function test.
I needed answers about my antibodies.
I also needed an answer on whether or not I was pregnant.
It was going to be an eventful visit.

I got all checked in, had my vitals taken, and got settled in my spacious patient room. It wasn’t long before my nurse, Kerri, came in and got the visit started. I really like Kerri. We get along quite well. She asked me the usual questions, told me about her weekend, and listened to my findings in regards to my pulmonary function tests. She seemed intrigued but clearly didn’t want to say much. She and I both knew Dr. Kirby was the one with whom to speak about this issue.

He wasn’t too far in timing behind her and, like usual, showed up relatively quickly. Unlike usual, another doctor was with him, tagging along to learn more about the never-dull world of lung transplantation. I had nothing against the guy, but I wasn’t really wanting to “confront” my beloved doctor in front of a complete stranger. I didn’t want to make him look bad in front of his colleague, but I had some things I had to say. Even though we had unexpected company, my curiosity couldn’t wait.

For the next several minutes we went over what I knew at that moment compared to what I knew when I drove into the parking garage approximately two hours ago. The poor doctor who came with Dr. Kirkby just silently stood in the corner while we discussed the ends and outs of pulmonary function tests and the change that, as far as I could tell, hadn’t been considered when analyzing my data since the miscarriage.

I asked extremely pointed questions, and like I expected, I got extremely honest answers. No, the sudden change hadn’t been taken into consideration. It was what it was. You can’t change the past. On the other hand, even if my lung function hadn’t undergone as large of a percentage change as first suspected (which was a very good thing), there still had been a change, a change worth investigating with everything else going on. Yes, the number had gone back up, but even if you used the old standards, it still wasn’t my highest reading recorded since my transplant. When you have antibody issues, it is better to be safe than sorry, after all.

Furthermore, the bronchoscopy would have still been necessary with all the antibody issues I was currently experiencing, since I hadn’t had any biopsies taken in 6 years; that’s like a lifetime in the transplant world. At that point, the pH probe test I also did 6 weeks prior wasn’t explicitly labeled “necessary,” but at least it was now done and showed I wouldn’t need surgery anytime soonIt wasn’t worth focusing on whether or not I should have done it. It was over. Bottom line, we were all thankful my lung function was up from 6 weeks ago and also higher the two times before that day than previously thought. For the sake of clarity, we agreed from now on, we would use the actual reading instead of the % any time my test results were discussed, in case of any more sudden changes in the predictors in the future.We agreed to be thankful and move on.

After months of uncertainty and so much emphasis on a percentage of lung function that never even existed, it wasn’t exactly the explanation I wanted to hear, but I accepted it and still loved my doctor just as much as before. I guess when you have been shown so often how much your doctor and your team care for you, when you’ve felt less than comfortable with – or genuinely cared for by- other physicians over the years, it’s easier to “forgive” oversights from those whom you trust. Yes, some unnecessary worry over my lung function could have been avoided. It didn’t matter, though. Unfortunately, all was not now right with the world. I still had a major antibody issue, one that was more than likely caused by the miscarriage and a serious issue, no matter what “system” you used to measure my lung function.

What I didn’t have, though, was a positive pregnancy test. Thank you, Lord!

Since we no longer had to worry about me being with child (still not sure why I was so whacked out) and my lung function was once again completely normal, our focus was once again on my antibody level.

Thankfully, the good news just kept on coming.

I was also informed that my former doctor, Dr. Astor, who had been in charge of my case from the first time I set foot into that hospital when I was 18 (2004) up until 2010 had been consulted about my antibodies and given his opinion.

“Don’t treat at this point,” was his answer.

Better yet, that was his answer even before the change in predictors for the pulmonary function test was even broached.

Though some in his field would disagree with him, with no signs of antibodies in my lungs, and my lung function so incredibly high, he didn’t find treatment necessary. Trusting his years of experience, Dr. Kirkby agreed with him. Consequently, as long as my numbers didn’t come back sky-high this time around, he made that sentiment his recommendation, as well.

If the numbers were still rapidly climbing, we’d just re-evaluate.
I was sent home to wait – again.

2 days later, my new antibody readings came back.

37% was my new measurement – only 2% higher than 6 weeks before. The numbers thankfully weren’t doubling anymore. No treatment was needed. I wouldn’t need to be seen for 3 months, and then we’d test again. We weren’t too worried at this point, though, since my lung function had gone up, I hadn’t shown any signs of rejection, and there were no antibodies in my lungs. For the first time in over 4 months,  I was free to go back to life as normal. Let me tell you. After everything we had been through the past several months, “normal” never sounded so, so good.

The End…of this chapter, at least. 😀

A new series to come on our plans to move forward with our family. You don’t want to miss it. 🙂

*John and I could never say thank you enough to those of you (strangers and friends alike) who have prayed us through this journey. Your love and support means more to us than you will ever, ever know.Whether you choose to continue to follow my blog or not, please keep those prayers coming! Thank you for giving us the privilege of seeing the body of Christ at work in such a beautiful, inspiring way. Though we never would have imagined what all 2013 would entail (thus far), we are so thankful that, though our circumstances have been far from consistent, not only has He remained constant but so have the prayers of the Saints. We love you all.

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Filed under Adoption, cystic fibrosis, grace, Health, Life, Miscarriage, Transplant

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